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Grangeville senior Addie Lutz holds Oakley Smith, a family friend and local 4-year-old afflicted with the motor neuron disease SMA.

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Flamingo Fun Run: Lutz’s idea raises money, awareness of SMA battle

Two years ago, Harvard researchers found a link between two motor neuron diseases: Lou Gehrig’s disease (ALS) — and spinal muscular atrophy (SMA), which threatens the life of tiny Oakley Smith.

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